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Last Updated: July 31, 2009 Related resource areas: Family Caregiving

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Acknowledgement

Adapted for eXtension with permission from: Brintnall-Peterson, Mary. (2003). "Wisconsin Families and the Communities Where They Live and Work: Family Caregiving Is Everybody’s Business." Madison, WI: University of Wisconsin - Extension. http://www.uwex.edu/ces/flp/demographics/caregiving.cfm. Last accessed: 05 July 2007.

References

  • Emanuel, E.J., et al. (2000). "Understanding Economic and Other Burdens of Terminal Illness: The Experience of Patients and Their Caregivers." Annals of Internal Medicine. 132:451-159.
  • Gutheil, Irene, and Roslyn Chernesky. (2000). Family Elder Caregiving: The Grotta Report on Philanthropic Trends and Best Practice Models. Ravazzin Center for Social Work Research in Aging: Fordham University Graduate School of Social Service.
  • He, Wan, Manisha Sengupta, Victoria A. Velkoff, and Kimberly A. DeBarros. (2005). "Current Population Reports: 65+ in the United States: 2005." Washington, DC: U.S. Census Bureau. P23-209.
  • Human Resources Institute. (2000). Measuring the Impact of Caregiving Responsibilities in the Labor Force: Employer Perspective. St. Petersburg, Florida.
  • Jayce, Elizabeth, ed. (2000). "Dimensions of Family Caregiving: A Look into the Future." Monograph prepared for a national conference September 12, 2000. MetLife Mature Market Institute.
  • Levit, K., et al. (2002). "Expenditure Data from HCFA, Office of the Actuary." Health Affairs. 21. **Another source for this data is: Arno, Peter S., “Economic Value of Informal Caregiving,” presented at the American Association of Geriatric Psychiatry. 24 February 2002.
  • Liu, K., Manton, K.G., and Aragon, C. (2000). "Changes in home care use by disabled elderly persons, 1982-1994." Journal of Gerontology: Social Sciences. 55B(4): S245-253.
  • National Family Caregivers Association. (2001). "Family Caregivers and Caregiving Families." http://www.nfcacares.org. Last accessed: 29 June 2007.
  • National Family Caregivers Association and Family Caregiver Alliance. (2006). "Prevalence, Hours and Economic Value of Family Caregiving, Updated State-by-State Analysis of 2004 National Estimates by Peter S. Arno, PhD. Kensington, MD: NFCA and San Francisco, CA: FCA.
  • National Alliance for Caregiving and Partnership for Caring. (2001). "Toward a National Caregiving Agenda: Empowering Family Caregivers in America." Author: http://www.caregiving.org/data/summit.pdf. Last accessed 06 July 2007.
  • O'Brien, Ellen, for The Kaiser Commission on Medicaid and the Uninsured. (2005). Long-Term Care: Understanding Medicaid’s Role for the Elderly and Disabled. The Henry J. Kaiser Foundation: http://www.kff.org/medicaid/7428.cfm. Last accessed: 06 July 2007.
  • Rosalynn Carter Institute for Caregiving. (2006). "Building Support for America's Caregivers." http://www.rosalynncarter.org. Last accessed: 05 July 2007.
  • Schulz, R, and S.R. Beach. (1999). "Caregiving as a Risk Factor for Mortality: The Caregiver Health Effects Study." Journal of the American Medical Association. 282:2215-2219.




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